For those of us with spinal hardware…and other fashion statements.

So,  if you’re like me, you had back pain for most of your life.  Even as a kid, my school backpacks would nearly break me in half, the pain was almost unbearable.  My parents ended up taking me to a spine specialist who had me lift my arms up & down, and then had me stand up and bend forward at the waist.  His diagnosis – no scoliosis, yes bursitis in the shoulder.  No x-rays were done, no MRI’s.  Well, back then, my parents didn’t know to ask.  This was a “specialist,”  a highly recommended “professional.”  And I was 12, so clearly I didn’t know anything.

Years later, I wanted desperately to be one of those moms who could use one of those popular front carriers.  Not only did my baby HATE the thing, I also cried out in pain as soon as it was strapped on.  My back was that bad.   End of the front carrier.

Fast forward some more years and I can’t take the pain in my back any more.  It wasn’t just knots in my muscles.  I was having nerve pain shooting down my legs.  Suddenly, the pain would start and I would lose feeling in both legs.  It would hit me when I was walking on the sidewalk, in the subway, crossing streets.  My fear was that it would happen while I was crossing the street and I would be hit by a car.  Dramatic, yes but also realistic.  It was way too much.

As this was post-RSD diagnosis, (but pre-intrathecal pump) my doctor referred me to one of the premier spine specialists in the country.  Premier guy has an ego the size of the Atlantic, but that’s another story.  After getting the right imaging, Super Doc told me that I had a spondylolisthesis and a spondylolysis.  Congenital spinal issues.  He asked if I’d had life-long back pain. Ummm, yeeeeees.   He asked why no one had seen these problems before?  What did I know?  I complained to enough doctors, they just pointed me in the wrong direction.

So I had surgery, got the hardware put in.  Then I was told I had developed arachnoiditis.  So, other than freaking people out with that label, some friends occasionally crack out the “Spider Lady” jokes, I was terrified of what it meant longterm.

Sooooooooo, this brings me to the present.  I’m two years post-laminectomy and surgical repair of the spondlo-twins.  Suddenly, I’ve got this wretched clicking sensation in my lower back.  It feels like two (or more) bones are getting stuck overlapping and the nerve pain is horrible.  When it finally un-clicks, there’s this weird thick sensation pushing on my spinal column.

Has anyone had this happen????  Or anything even remotely in the same book, if not the same page??  Help!!!  X-rays were done today.



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